
Terry Murray’s hairstyle is chic, with her brown hair cut in a fashionable bob. When she was diagnosed with HER2-positive, stage 2B breast cancer in 2022, her first thought was, “Am I going to die?” Her second thought was, “Am I going to lose my hair?”
For Terry, the retired chief financial officer of Beaufort-Jasper Water & Sewer Authority, it was less about vanity and more because she did not want to be constantly reminded of her illness or unable to “hide” it from the rest of the world.
“I have two friends in their 30s with toddlers who were diagnosed with breast cancer,” Terry says. “A big concern for them was that they did not want their children to be afraid of them if they lost their hair. I had not thought about a mother’s fear for her children versus her own vision in the mirror.”
She is not alone. According to the American Cancer Society, one in eight women will develop invasive breast cancer in the course of their lifetime. The majority of these women will experience psychological distress regarding their diagnosis and selecting the best course of action, the financial burden of cancer treatment, and concern about looking like a cancer patient, especially when it comes to hair loss.
“Hair loss means many things to many women and men,” Terry says.
Discovering DigniCap
While in a hospital waiting room, Terry noticed a brochure on scalp cooling to minimize hair loss for patients during their chemotherapy cycles. She was about to start her infusions and turned to her medical providers for advice.
“You have to advocate for yourself,” she says. “It is not that you are questioning the medical team but rather making yourself more informed. Information is power. And with a cancer diagnosis, you want all the power you can get.”
Terry discovered that the treatment was available close to home, as Beaufort Memorial Hospital was the only facility in the area with the training and equipment to administer DigniCap, a leading product in the reduction of chemotherapy-induced alopecia, the clinical term for hair loss, for patients with solid tumors.
“The fact that this local hospital would offer DigniCap speaks volumes,” Terry says, who was familiar with the nonprofit hospital, having chaired its board of trustees from 2014 to 2018. “I was pleased to see that Beaufort Memorial had the foresight to get involved with the DigniCap system and rely on new technology to care for patients.”
Read More: Get a Handle on Chemotherapy Side Effects
‘Reassuring’ Voices During Treatment
The concept of cooling the scalp dates back to the 1970s when some cancer patients began using bags of frozen vegetables or ice packs to try to stop the cancer drugs from burning their hair. In the early 2000s, a Swedish oncology nurse partnered with an engineer to develop the DigniCap system, and in 2015, the medical device received FDA clearance.
“I have seen firsthand the benefits of DigniCap,” says Beaufort Memorial oncology nurse Brandie Gillian, RN, who treated Terry. “By cooling the scalp, you decrease the blood flow to the area so less of the chemicals reach the hair cells.”
Terry first met Gillian via a phone call.
“I called her because I was frightened about the infusion process and questioned if DigniCap would work,” Terry says. “Brandie’s voice was reassuring.”
Terry is particularly grateful to Gillian and all the BMH nurses for their compassion, care and keeping her at ease, including “continuously bringing warm blankets.”
“Beaufort Memorial has an incredible cancer treatment team, and everyone has the patient in mind,” Terry says. “I never was so uncomfortable that I thought, ‘I cannot do this.’ Although the DigniCap treatment is extremely cold at first, it does go away.”
Read More: Cold Capping: Help for Hair Loss During Chemo
Getting Started
According to Gillian, the DigniCap system currently costs around $250 to get the kit, which includes a cap, insulation hat, spray bottle, headband and storage bag. It is $300 per treatment, making the total for the entire course between $1,500 and $2,500 based on the number of cycles of chemotherapy a patient receives.
Insurance coverage varies by plan and other terms, such as co-pays and deductibles, may be stipulated by the insurance provider. It is recommended to contact the patient’s insurance provider to see if scalp cooling services are included in coverage. Additional insurance and reimbursement information is also available online from DigniCap, including a downloadable reimbursement guide and links to several organizations that offer cost subsidies.
“While it can be expensive, I want to get the word out to people that they don’t have to lose their hair,” says Terry. “It works on all hair types.”
She adds that Beaufort Memorial offers resources to minimize money worries for its patients, such as subsidy options like Dignitana’s HairToStay and The Rapunzel Project.
“Cancer is about the small victories,” Terry says. “The small victories — like keeping your hair — help you to win the big victory.
If you are a cancer patient undergoing chemotherapy and want to minimize hair loss, speak with an oncology nurse navigator about the possibility of adding DigniCap treatments to your chemotherapy plan.